April Awareness Month 2008
VACO would like to thank Sam at
http://www.shewee.com
For their generous donation which has helped fund our Awareness month in April 2008
Shewee have acknowledged how Ladies who have had vulval surgery due to vulval cancer and the other diseases, disorders and conditions of the vulva need this excellent little gadget which Sam invented.
Their donation will be used to pay for Vulva Self Exam (VSE) leaflets to be printed and distributed throughout the
These will help educate ladies how to do this important health check and help them to learn to get to know what signs and symptoms to look for.
We do not wish to alarm or scare Ladies, but to educate them as they have been educated to do their breast check every month and encourage them to make this simple exam a part of their own health care in the future.
The Ladies who belong to VACO would like to say, Thank you to Sam for believing in what we are trying to achieve in our Awareness month and for supporting us as they have done in the past.
This is a major step forward for VACO, the links we now have on so many hospitals in the UK continues to grow, which mean ladies will now be able to access the website and also the telephone support line across the UK and also Internationally.If they so wish they can also access to the online support group. Information is now available for these ladies on the website, which is one aspect of help Ladies, will always be in need of, and which covers a wide range of information of all kinds.
New information is being added to the website continuously and as often as possible, so please do check back for updates.
Support from Ladies who have been through exactly the same is the best kind of support Ladies could have, be it a one to one , group support, or telephone support, all of which have proven to be invaluable to all our Ladies.
VACO have now been listed 2nd on the guide to the world’s best and most popular vulva/vulvar cancer websites in the world.
What an amazing achievement this is for VACO!
VACO would like to thank cancergen for very kindly listing us on their website and giving us the recognition we think we have now earned with all
the hard work and determination we have put into promoting the website, addressing the issue of the importance of raising awareness with this
rare cancer and also encouraging Ladies to perform their own health check
The Northamptonshire Centre For Oncolgy
http://www.northamptongeneral.nhs.uk/Oncology/Clini/Gynae.htm
South
http://www.patientinfo.selcn.nhs.uk/cancertypes/Vulva/wherecanIgetmoreinformation
Guys and
http://www.guysandstthomas.nhs.uk/resources/patientinfo/Oncology/GynaecologicalCancerTeam.pdf
This is one of the best booklets I have seen on vulval cancer! It is easy to understand and has every contact number you will need from your diagnosis, during and after your treatment. It also mentions you will be allocated a key worker whose contact details will be given to you, again if you need any advice or help before, during or after your surgery you are encouraged to contact you key worker.
It also lists every health professional who will be involved with your care and how to contact them should you need to, along with the secretaries details, support group contact details and their own cancer care centre.
Greater MiIdland Cancer Network
http://www.greatermidlandscancernetwork.nhs.uk/patientinfo/gynae/links.htm
GMCCN Cancer Network
Central Manchester Gynaecological Cancer Service
http://www.cmmc.nhs.uk/cancerinfo/gynae.asp
Barts & The London Gyanecological Cancer Centre
http://www.bartsandthelondon.nhs.uk/Gynaecancer/links.asp
A leading specialist centre caring for women with a suspected and actual diagnosis of gynaecological cancer.
Other organisations now supporting VACO
The
http://www.oxfordcancerinfo.org.uk/index.aspx?o=2018
Surgery Door – Support Group
http://www.surgerydoor.co.uk/sg/detail.asp?Recno=26741219
Wilkipedia encyclopedia
http://www.en.wikipedia.org/wiki/Vulvar_cancer
BBC Ladies Health Issues
http://www.bbc.co.uk/health/womens_health/issues_vulvalcancer.shtml
Gynae Cancer Support Group
http://www.gynaecancersupportgroup.net/
More
of the progress VACO has achieved will be available as soon as possible, due to the high volume of support requests being receieved at the moment it is not possible to update all the new information at this moment, but please do check back for updatesPlease check back soon, We will look forward to your return
Thank You!
APRIL 2007
is
VULVAL CANCER AWARENESS MONTH
Please Forward the Facts on Vulva Self exams
This is our second year of launching our Vulval Cancer Awareness Campaign for 2007 which will hopefully be as successful as last years was. Going off our website statistics from the launch in April 2006 to the end of the year, we had over 100,000 hits. Ladies are finally beginning to take notice of our campaign along with many health professionals.
We had so many enquiries last year it took over 2 months to get all, the VSE leaflet’s out and other information Ladies were also requesting.
I hope you have visited our website to find out more about this rare cancer, and how to educate yourself in how to do a vulva self exam.
It is not our intention at VACO to frighten you but to make as many Ladies aware as we possible can and help you to understand how important this self exam is to do, along with your Breast exam every month.
Awareness and early detection does save lives as with all cancers, and vulval cancer, if detected early has a very good prognosis.
It is therefore recommended by the experts, that Ladies should be encouraged to learn how to do this simple self exam, and by doing this and getting to know how your vulva looks, and what is normal for you, you will be able to pick up any early changes and medical attention can be sought as soon as you see any changes.
If you do notice any changes, please seek medical advice immediately, but please remember this cancer is a rare cancer and accountable for 4% of all gynaecological cancers.
If you would like a VSE leaflet please email me your details at:
vacouk@yahoo.com
I will be happy to send you a leaflet or you will be able to download one from the website shortly.
Please help us to help all Ladies to be aware of this cancer type by passing this website link on to all of your friends, family and work colleagues and also asking them to pass the link to their family and friends too. Please remember to Forward the 3 lines below to as many Ladies as you know all over the world and ask them to also Forward this information on. We can if we all forward the awareness link of make thousands of ladies aware of this important part of their own health check.
Awarness Saves Lives!!!
Please, Pass it on...
www.vaco.co.uk
Thank you, and Thank you for visiting our website
Please read what the experts say!!!
Cancer of the vulva is relatively rare, affecting in the main, women over the age of 60, although younger women can still present with pre-invasive and invasive vulval cancer.
The exact cause of vulval cancer is at present unknown, but several risk factors have been suggested including: chronic inflammatory vulval disorders, benign inflammatory conditions, Human Papilloma Virus infection, advanced age, smoking and environmental factors.
Vulval cancer can present with a number of symptoms. Whilst itching is the most common indication of an early cancer, it can also signify a number of other, non-malignant vulval conditions and as such requires the early attention of a medical practitioner. The most common symptom of vulval cancer is a mass or a lump, associated with itching.
Other symptoms may include bleeding, discharge and a degree of vulval pain and/or painful intercourse. As a result of recent Government policy all women suspected as having a vulval cancer by their General Practitioner must be referred to a Gynaecologist and an appointment made, to be seen within two weeks.
Treatment for vulval cancer includes surgery, radiotherapy and occasionally chemotherapy, and is dependant upon the clinical stage of the cancer. Treatment is planned on an individual basis, taking into account the wishes and concerns of each woman
The overall prognosis for cancer of the vulva is very good, particularly if diagnosed early. Women should therefore be encouraged to undertake self examination and to seek early medical advice should they become concerned of any physical change in the vulval area.
Mr Richard Slade FRCS MRCOG
Consultant Gynaecological
Annette Halliwell RN BSC(Hons)
Gynaecology Oncology Clinical
Many thanks to Mr.Slade and Annette for, taking the time to write this very valuable piece of information for VACO and for all ladies to read and educate themselves on the signs and symptom’s of vulal cancer.
VACO
Thanks to all of the people who supported us in 2007
VACO would like to thank Channel M for being the first TV company in
the UK, in acual fact in the world to acknowledge this rare cancer in a live TV interveiw with Carol.
It was a tremedous boost to our campaign to have Channel M help promote the campaign and we have had literally hundreds of enquiries from Ladies who were wanting information on how to do a Vulva Self Exam.
Thank you on behalf of all Ladies who have been diagnosed with this rare cancer, and for you helping us to promote the importance of a doing a self exam.
http://www.channelm.co.uk/
The RCF offers advice and information to individuals with rare and lesscommon cancers or to their families and friends, providing a 'bespoke' service by phone/email/post.
We would first like to thank Bravissimo
http://www.bravissimo.com/bravissimo/
For their very generous donation which has helped fund our first ever Awareness month in April 2006.
Bravissimo are the first British company in the UK to recognise the need for our awareness month about this rare cancer, and the importance of educating Ladies about this disease, and encouraging them to do a vulva self exam.
Their donation has paid towards the badges we have had made for April, which will be available to purchase via the website at www.vaco.co.uk Their donation had also funded VSE Leaflets and the posters and information cards which, which have been distributedi the UK and internationally. All the Ladies who belong to VACO would like to say a big thank you to Bravissimo for believing in what we are trying to achieve with our first ever UK National and International Campaign.
Our thanks once again to Macmillan for believing in what we are trying to achieve.
We would also like to thank Macmillan for their donation to fund the VSE leaflets for the month, along with the badges, and also fund the VACO magnetic ribbon which was presented to Carol from Texas by Craig from Creative Signsworks, West Texas.
We would also like to thank the following for their continued support
BSSVD
www.bssvd.org
British Gynaecological Cancer Society
http://www.gynaeonc.org.uk/forum/sitenews.asp
ICON Magazine article for VACO - My Story
http://www.canceractive.com/page.php?n=1039 Cancer
Northern Network
http://www.cancernorth.nhs.uk/involvingpeople/newsandevents
Wirral Hospital NHS Trust
http://www.whnt.nhs.uk/hospitals/calendar.asp
Bebington & West Wirral Primary Care Trust
http://www.bwwpct.nhs.uk/whats_going_on/calendar.asp
RCOG
Access to Support and Information
It is excellent to see the RCOG acknowledging the need for Ladies to access support and share information with Ladies who have been treated for the same condition.
http://www.rcog.org.uk/resources/Public/pdf/vulval_cancer.pdf
RCN
http://www.rcn.org.uk/publications/pdf/gynaecologicalcancer.pdf
The Christie
http://www.christie.nhs.uk/patientinfo/booklets/TextBooklets/Gynaecology/vuval_cancer.html
Central Manchester and Manchester Children’s University Hospitals
http://www.cmmc.nhs.uk/cancerinfo/support.asp
Vulva pain society
http://vulvalpainsociety.org
Cancer Research UK
http://www.cancerhelp.org.uk/netscape/help/default_printer_friend.asp?page=4978
Cancer Bacup
http://www.cancerbacup.org.uk/Resourcessupport/Organisations/Searchall/1611
CURE US
http://www.curetoday.com/toolbox.html
Cancer and You
Call – Supporting people living with cancer
ADITUS part of the National Library for Health
http://www.aditus.nhs.uk/Aditus/Patients+and+Public/A-Z/F/Female+Cancer/default.htm
Western Area Health NHS Trust
http://www.aswcs.nhs.uk/hospitalteams/WAHT/Cancer%20Services%20Directory%202005%20-%20final.pdf
We wish you success in your campaign.
Department of Public Affairs
The North West Gynaeclogical Cancer Networks, Clinical Nurse Speciality Subgroup. These nurses decided it was time to raise the profile on all gynae cancers and in the first year they arranged this it was a huge success, and has been since.
The following links are all about the same nurses and their continued commitment to help raise the profile of the gynae cancer awareness week, which is usually held in September.They are still working very hard to keep on raising the profile on all of the gynae cancers too.
What these very special nurses are working towards is to give all gynae cancers a higher profile than they have now, and they should all be commended for their dedication to this very important health issue. We as patients are truly thankful to each and every one of them for their dedication to this
http://www.christie.nhs.uk/PressRelease/2003/220903.htm
http://www.christie.nhs.uk/PressRelease/2005/300905.
http://www.healthypages.net/news.asp?newsid=3716
Enthusiastic Students from Holy Cross College in Bury have helped raise awareness for a rare form of gynae cancer as part of a charity double header.
Please access the link below and read about these amazing Students
http://archive.thisislancashire.co.uk/2004/04/29/493283.html
Best wishes with your work.
Women's
http://www.wcrc.org
Thanks to the following Newpaper and magazines for pulishing our stories and supporting us as a group, to raise the profile on vulval cancer.
Manchester Evening News
Woman Magazine
Top Sante Magazine
Macmillan Cancer Voices
Link to The Daily Mail Health Website
Thank you for acknowledging vulval cancer and the facts which ladies need to know!
Many thanks to Helen Reddie, who specialises in Lymphodema and how to deal with this, recognise the symptoms, and generally educated us all on this devastating condition which not only has a huge physical affect on us all but also the psychologically affect this also has on us all.
Helen has sent our group vital information to help us all understand in simple terms how the lymphatic system works, is affected after we have had our groin nodes.
Helen on behalf of all the ladies of VACO we would like to say a Big Thank you for taking your own time to help us have a greater understanding of this condition.
Thank you so much
VACO