I have supported a lot of Ladies from the US and through listening to them about not knowing who to turn to for help is why I am trying to get as much quality information, support and help as I can to help reduce the stress you have to go trying to find the information you want.
I hope the information on this page will help direct you to the appropriate information, support and help you need, without you having to spend many hours searching yourself.
I am still working on this information and it will be added as and when I find more quality information for you.
If you know of a service available in the
I think the first place you should look for information on vulval cancer is the NCI
National Cancer Institute in the
They can be contacted a few ways, the first being their website at
http://www.cancer.gov/ this will take you to their homepage which lists all the different cancer types.
To access the specific links for vulval cancer please go to
http://www.cancer.gov/cancertopics/types/vulvar
You will find a lot of information about vulval cancer, for more general information on vulval cancer please click on the following link
http://www.cancer.gov/cancertopics/pdq/treatment/vulvar/patient
This is recommended for patients and is quite informative and also easy to understand.
There are a lot more clickable links on this page which are all underlined so as you can easily see them. If you are new to the internet, please remember if you click on a link on any page it will open a new page up, when you want to go back to that page, just click on your back button this will take you back the page you were previously on.
To view the FAQ please click on the following link
How to order, NCI publications.
NCI offers a wide variety of free educational print materials. You can view and order publications online through the NCI website.
To find out about their publication list please go to https://cissecure.nci.nih.gov/ncipubs/ where you will be able to choose the information you wish to order.
To see the catalogue of information available please go https://cissecure.nci.nih.gov/ncipubs/pdfcatalog/NCICatalog.pdf
This document also contains a vast amount of information on: Treatments Options, Clinical Trials, Coping with Cancer and many more. You can also order some of the publications by calling the NCI's Cancer Information Service at 1-800-4-CANCER (1-800-422-62370.
You can also order publications by calling the NCI's Cancer Information Service at 1-800-4-CANCER (1-800-422-6237).
Or you can Telephone them and talk with an information specialist from the NCI's Cancer Information Service, in English or Spanish, within the
Monday through Friday 9:00 a.m. to 4:30 p.m. local time.
1-800-4-CANCER (1-800-422-6237)
TTY: 1-800-332-8615
NCI Public Inquiries Office
6116 Executive Boulevard
Room 3036A
There are so many websites it is hard to know which are the best ones, it can be very confusing and distressing if you have just been diagnosed and are looking for good quality and honest information. The following ones are ones I have found and as a patient I think these are all excellent websites and contain up to date information and what to expect with your diagnosis and surgery.
http://www.fccc.edu/cancer/types/gynecological/vulva.html
This website by Fox Chase Cancer Centre is one of the best I have seen. Fox Chase is a cancer treatment centre whose doctors specialise in cancer; and they are experts in particular types and the doctors' expertise will match the type of cancer you have.
They also are one of few who offer and also accept that reconstruction surgery may well improve the quality of a Ladies life.
http://www.fccc.edu/pdq/English/Patients/VulvarCancer.html
This link is for general informtion about vulvar cancer
This next website is a general health one which has some excellent information about vulvar cancer, and is very explanatory and easy to understand.
I have a lot more information to add on to this page and I will add this for you as soon as possible.Please bear with me, Thank you.
