VACO
CancerHelp UK
They have nurses at the end of the phone to help, advise and support you, details below.
If you have a question about cancer? Call our team of Specialist Nurses on 020 7061 8355, or freephone
0808 800 4040.
Lines are open Monday to Friday, between 9am and 5pm.
The website contains good quality Information on every single cancer, and links to so many support groups.
The patient information website of Cancer Research UK contains plenty of information on the facts on Vulval Cancer, surgery, ongoing treatments and very aspect you will need to know about your about your forthcoming surgery and treatment.
It also has had patient intput into the vulval cancer section which I was honoured to help with, and most important they listened and took on board everything I and I do feel they have one of the best and are more than willing to listen to the patients point of view and make changes which are beneficial to the patient, partner, carer and family.
This year some very good images have been added to the website to help you try to get some idea of where the incisions will take place with teh surgeries mentioned, but we are all treated as individuals so not all our treatments will be the same. I was really pleased when these images were added to the webiste as many ladies have asked me in the past what will I look like and where will the incisions be made, these digarams I believe will give so many ladies an insight into what exactly their own treatement will entail.
If for any reason you cannot see what you are looking for, you can either email me vacouk@yahoo.com and iI will find out for you, or you can email Cancerhelp where I know they will also be happy to find any answers for your questiosn. If you do have a question you would lke an answer for, please email CancerHelp at
This following link takes you to the section on vulval cancer, which has a lot of excellent information on, easy to understand and written in a language we as lay people can easily understand You can access this link at
http://www.cancerhelp.org.uk/help/default.asp?page=4949
You will find all the information you will need to know about vulval cancer, all in a language which is easily understood by lay people, which is not full of medical jargon we cannot understand.
The section is quite a large section, and it it as good idea to work through every single link in this section which will educate you about this cancer type and what to expect. You will also find some very useful suggested questions that have been written down for you to take to your Consultant and discuss them with him/her.
The link takes you to the, "Questions for your doctor about vulval cancer".
http://www.cancerhelp.org.uk/help/default.asp?page=4959
These are very useful questions for you to ask your Doctor, its is difficult when you are under so much stress and just after a cancer diganosis to remember all the questions you need to ask, so writing them down and going through them with your Doctor is one way you will be sure not to forget any of your questions, enabling you to leave your apppointment with all your questions asked.
This link has questions for you to ask about the tests you may have to undergo
http://www.cancerhelp.org.uk/help/default.asp?page=4961
If for some reason any of your questions cannot be answered at this time, ask your Doctor to find the answer for you and get back to you with an answer as this all helps make this journey a lot easier when we get all the information we will need and all the answers to our question.
Quote from CancerHelp UK
All our information is written by cancer nurses and reviewed by specialist nurses, doctors, surgeons and oncologists. And each section is reviewed by a patient reviewer to make sure it makes sense to the general public. We also write all our information in accessible plain English, and are endorsed by the Plain English Campaign.
The following link will take you to this page.
http://www.cancerhelp.org.uk/help/default.asp?page=5500
CancerHelpUK is one of Cancer Research UK’s 5 main websites. Cancer Research UK is the world's leading independent organisation dedicated to cancer research. We support research into all aspects of cancer through the work of more than 4,250 scientists, doctors and nurses.
The link for the homepage of the website in case you have come across this page when looking for another cancer type can be accessed at www.cancerhelp.org.uk/ the link will take you to the home page where you will find the following options.
About Cancer
CALL - Cancer Aid & Listening Line
CALL – Cancer Aid & Listening Line - is a local charity providing emotional support and home-based practical help to people living with cancer, their carers and families. All services are delivered by trained volunteers who are managed by a team of professional staff based in offices throughout Greater Manchester.
http://www.canceraid.co.uk/
Branches:
North to Central Manchester
Victoria Mill Healthcare Centre
10 Lower Vickers Street
Miles Platting
Manchester M40 7LJ
Email: northmanchester@canceraid.co.uk
Tel: 0161 205 8446
Fax: 0161 203 5962
South to Central Manchester
c/o Neil Cliffe Cancer Care Centre
Wythenshawe Hospital
Southmoor Road
Manchester M23 9LT
Email: southmanchester@canceraid.co.uk
Tel: 0161 291 2911
Tel/Fax: 0161 291 2910
Salford
The Willows Health Centre
Lords Avenue
Weaste
Salford M5 2JR
Email: salford@canceraid.co.uk
Tel: 0161 743 1555
Fax: 0161 743 1666
Stockport
c/o Beechwood Cancer Care Centre
Chelford Grove
Stockport SK3 8LS
Email: stockport@canceraid.co.uk
Tel: 0161 480 5464
Tel/Fax: 0161 480 6872
Trafford
The Macmillan Care Centre
Moorside Road, Davyhulme
Manchester M41 5SN
Email: trafford@canceraid.co.uk
Tel: 0161 747 2452
Fax: 0161 749 9671
Macmillan Support & Advice
Macmillan Support and Advice on Benefits
If you have been diagnosed with cancer, the last thing on your mind will be your finance’s. This can be said for any kind of cancer, the diagnosis comes along usually out of the blue, then the surgery and possibly more treatments take over your life, it can be a good few weeks if not months before you realise your income has dramatically been reduced.
To make calls and attend appointments can be very tiring and stressful, also trying to find out exactly what you are entitled to can also be a traumatic experience on top of all the added stress of the cancer diagnosis. Thankfully, Macmillan, have brought out a new booklet, which is just a phone call away.
The booklet is called 'Help with the cost of cancer' It is a guide to benefits and financial help for people affected by cancer. To obtain your copy all you have to do is make a phone call to the new freephone number. The new service can be accessed by calling
Freephone 0808 808 2020 between 9-00am and 6-00pm Monday to Fridays.
A Link Language Line service helps callers in up to 150 languages. A textphone service is also available for deaf and hard of hearing people on
0808 808 0121. Some people may want medical information, or help with what questions to ask their doctor. Or they may need advice on caring for a loved one with cancer.
We all have the right to access high-quality information about cancer to help us make the right choices about our treatment and care. You will get as much help and advice as you need when you call this number as they are all trained advisors and will listen to all your concerns and also help you to deal with them all of them with the least amount of stress involved.
Macmillan has covered every benefit available in this booklet, and is also very easy to understand and offers a huge amount of the excellent advice we have become accustomed to receiving from MacMillan.
You are no longer alone to deal with all of these problems so pick up the phone and make this call. You can also access the Macmillan website at http://www.macmillan.org.uk/
Please check back for new information. If you have come across this page seeking support or information and you cannot find what you are looking for, please email me at vacouk@yahoo.com and I will do my best to help you find what you are looking for.
Thank you for your patience
Cancer Backup
Cancer Backup Support & Information
You will find all the answers you are looking for In this section on vulval cancer, the surgery and treatments. You can either print this booklet on line yourself, or call one of the Cancer Bacup nurses whom are all trained, (Cancer Information Nurse Specialists) they will advise you of the many other booklets which are available to patients and their families all free of charge.
If you click on the link below this will take you the "Resources & support" page where there is mound of information for you you to access, the link for this section is:
http://www.cancerbacup.org.uk/Resourcessupport
These can be ordered on line or over the telephone. The contact number is a Freephone helplineon 0808 800 1234 and you can be assured there will be a very helpful and understanding nurse on the other end of the phone who will go out of there way to offer you support and advise you on all the information you may need during the the journey you are now facing, for you and your family.
These nurses are there to support you in any way possible and it is worth calling them and having a chat with them, they will advise and support you and your family through this very difficult time. Their Helpline is open Monday to Friday from 9-00am to 8-00pm.
